Comments on: Fibromyalgia: Sign Me Up!

By: Marie

Marie — Thu, 26 Jan 2012 09:53:58 +0000

Oh My God. Just found this website after searching for more information on Fibromyalgia. What a sick bunch of people. I agree wholeheartedly with Lori, You should be careful what you wish for. This is very real, very frightening and disabling disease. Maybe instead of ‘fibro’ bashing you should take a good look in the mirror and ask yourselves why you would be so pathetic as to sit in front of a computer screen and belittle, question and mock a disease that you obviously know NOTHING about.

By: Lori

Lori — Sat, 21 Jan 2012 08:36:53 +0000

“Sign me up” … be careful what you wish for – karma is a real bitch. One day you may find yourself, or a close loved one, living with severe chronic pain. I hope they show you more understanding and compassion than you seem to be capable of. Have you ever thought to yourself … ‘just what if I’m wrong??”

I won’t waste my time sharing another perspective, because you are clearly too self-righteous and judgmental to even consider the people you choose to belittle do have a real disease and can suffer greatly. Shame on you.

By: Fr0ze

Fr0ze — Fri, 20 Jan 2012 10:41:36 +0000

I’ve had fibro all my life. I was mis-diagnosed for years, I was told it is all in your head, excersise through the pain and fatigue, I did so. I loved horses, mountain biking, I lived on the edge of moorland and was incredibly active thinking child. I killed myself nearly. I wanted so much to excersise through the pain that I kept going and going – doctors told me to push through the pain barrier and I tried. I ended up in bed in agony, throwing up, symptom after symptom. When I was finally diagnosed age 21 I was wheelchair bound unable to care for myself at all. Since being diagnosed I have learnt to control what I do, what I think, how I react and although I haven’t been able to undo all the harm I have done to my body, ligaments, muscles, neuro plasticity, I have been able to give myself a better life and work to rebuilding my body. I now have a partner and a daughter, something pre diagnosis I never ever thought would b possible. I have noticed that criteria for fibro patients diagnosis has gone from 1 year pain in all 4quadrents to 3 months pain in 2 quadrants. I know that 11 tender points r still required but until a blood test, scan ect is able to prove ome thing is wrong they won’t accept it no matter how I’ll u r, or disabled u are, no matter ow hard you try u get tossers going your just lazy, it’s all in ur head ect. That’s life!

By: Teresa

Teresa — Thu, 19 Jan 2012 13:29:18 +0000

I have suffered with FMS for 20 years. I was in my late twenties was slim and active, happily married with two young children when I was diagnosed. I did not choose to have this terrible condition and would not wish it on my worse enermy. We as sufferers did not name the condition and also did not sum all our ailments into it, the doctors did. Unfortunately some doctors when they know you have fibro will dismiss the new ailment that you are suffering from and will say its your fibro. Is this laziness on their part or is it because they do not really know what is wrong with you. The people who get cured from FM must of been miss diagnosed in the first place and the people who do not beleive its exsistence should spend more time thinklng positively instead of spending their precious time finding faults with people who suffer.

By: John

John — Wed, 21 Dec 2011 20:30:59 +0000

I have a roommate who claims to have this and I honestly wouldn’t be surprised if he’s one of the fakers. I’m not trying to say that this is a made up disease, as he is the only person I’ve heard say he has is (never heard of it before him), however I’m a bit skeptical. He’s always been a very self centered, manipulative person (before his “fibro” came about), and viewed himself as a victim to anything bad in life and that “the world is always against me.” He’s been possibly the most difficult person ever, and that’s after I’ve given in to almost all his demands. I’ve come to the conclusion that nothing will ever be enough for him. I can’t continue to cater to his every whim and the second I take a stand against something (the requests really get absurd), I get berated for being a terrible person and the worst person in the world.

While he states that he has fibro and that I just don’t understand and am a garbage person because of it (no matter what I do or say…and I’ve tried to be compassionate over and over and cater to his demands), I also know that he has never had any regard for anyone else in his life and anything he can use to his benefit, he will, no matter what it does to someone else. He has a history of this long before his supposed disease.

He’s also had drug problems before (both prescription and non) and after lots of lost time trying to understand him, which I can’t, I’ve come to the conclusion that he’s some sort of sociopath mixed with narcissism.

Whether his condition is true or not I can’t say for sure, and for those who truly have it, I’m sorry. Regardless, you can’t go around in life placing all your faults on other people expecting that everybody drop everything to help you, and in return you literally treat everyone like a piece of garbage. I have empathy for people until they treat you like scum over and over for doing nothing but trying to be understanding (ofcourse I’m never understanding enough though), at which point I chose to remove you from my life.

If he does have fibro, which I doubt, and people with it are similar to him, while I do feel sorry for you all with the disease, I also feel sorry for the victims whose lives you also make just as miserable as yours (maybe not physically, but mentally). Sorry for this rant but I was researching this to try and gain understanding and ran across these comments.

If he is a fake and I’ve incorrectly labeled any of you then I apologize. HOWEVER, if my above descriptions sound like you than having pain doesn’t give you the right to trample on others and if you ever want to receive empathy, then you need to return it once in a blue moon. Also, stop being a little cry baby about everything and learn to move on with your life. Try not being the most selfish POS alive, although I doubt you all ever will because you’ll just disregard this post since it doesn’t agree with youre preconceived ideas.

By: Geneva

Geneva — Mon, 19 Dec 2011 21:35:44 +0000

And then there are people like me; who are dreading going to the doctor at all because of ignorant people like a lot of you out there preaching about something you know nothing about (nor do I) but I don’t go around pretending I know everything about a diagnosed illness when I am clearly not a doctor! Fibromyalgia is in my family. My mother has it. She is an extremely strong woman and forces herself to lead a normal life even though it absolutely is killing her! She refuses to let anything keep her down. I have seen her cry – no, sob in pain! Now I have a strong gut feeling that I have this. I have been delaying a doctor visit because I just shrug it off to be ‘normal aches and pains’, but I’ve worked in the holistic industry long enough to know there should not be even ‘normal aches and pains’, something is ‘off’ somewhere! Anyway, I am also a very strong woman in my opinion. I had my babies at home with no pain medications. I can handle pain! But NOT EVERY FREACKIN’ day! Sometimes I think I’m going to loose my mind because the pain is ridiculous and constant, and never in the same spot! BUT, I will probably put off having anything done about this. WHY? Because I’ll be damned if I’m going to listen to someone tell me it’s in my head, or it’s non-existent, or listen to people like YOU! Karma is a bitch and I surely hope you don’t ever end up with an ailment that gets you down! Shame on you.

By: Jonella

Jonella — Tue, 13 Dec 2011 03:36:34 +0000

Fibromyalgia is real, my aunt who was only 54 years old died of fibromyalgia.

Fibromyalgia is a deadly disease. Fibromyalgia kills over time. Fibromyalgia is not fake. Fibromyalgia will become the leading cause of death in the United States in the next 10-years.

Fibromyalgia is the newest epidemic disease that will stop the United States in it’s tracks.

We must find a cure for Fibromyalgia before it is too late.

http://www.youtube.com/watch?v=3nIfvomIxic

By: KatKat

KatKat — Thu, 08 Dec 2011 01:53:17 +0000

Hi There!
I’m Kat, a 21 year old ex- dancer and teaching student from England…First point being I dont pay for my healthcare and am with the same doctor…
I am also in more or less good health, Mentally stable, from a normal council estate background and am well educated (2 grades of Camebirdge), Also being a student any hard work is my own choice, given that a swim every week, used to dance (not ballet but hiphop, jazz, ballroom and street) I also like to think I am fit and though I am a UK size 16 I also walk 6miles to town once a week.

I also have FM! First noticed when my arms and legs would randomly go dead or have pins and needles which i cant ever remember not happening, then as the doctor looked through my notes he realised I had been admitted for possible dance injuries that turned out to be nothing several times, At first I as tested for a trapped nerve in my back then for autoimmune diseases. At 18 I was rushed into hospital with massive pains in my chest, an ECG showed nothing and eventually I was told “must have been a spasm, dont panic, you could cause it to re-occure”!

All these symptoms slowly came together and after nerve testing, pain response ect I was diagnosed, we have found things get worse with stress and I have learnt the occasional pattern in my illness (which it is). I know I I have a day where the pain is bad its best to go to bed early as would anyone else and then wake up refreshed rather than push through and be physically incapable of moving the next day.

On the basis “its all in my head”, it could be for all I know! Amputees have reported phantom pain in their lost limbs and in epidemics peoples bodys have produced the symptoms with no cause except panic, so it could be my head playing tricks on me but you woldnt tell a man with schitozphrenia he is not ill, even though its all in his head?

Dont judge, just educate and formulate an opinion, an opinion is never wrong just ill informed x
KatKat

By: Sylvia

Sylvia — Sun, 20 Nov 2011 20:10:10 +0000

In 2006 I suffered a tramatic life event, a tragic, sudden loss of a loved one. I spiraled into grief, depression, and anxiety. Within the next couple of years, I was dignosed with IBS, chronic fatigue, and, eventually, fibromyalgia. At the time, I truly believed there was something physical going on, but all the extensive testing performed on me was unremarkable. It wasn’t until 2009 that I ‘awakened’ to the fact that my underlining condition was depression. Once I came to terms with that and underwent extensive grief therapy, the classic ‘fibro’ symptoms melted away.

The last thing I want to do is insult anyone, as I know first hand how miserable ‘fibro’ symptoms can be. I believe the majority of ‘fibro’ cases are psychologically induced, whether due to a personality disorder/mental illness, drug seeking/attention seeking behavior, or depression due to a life event. There are, however, the handful of legitimate cases. For those people, I hope they find the painfree life they deserve.

By: Jeff

Jeff — Sat, 19 Nov 2011 14:14:28 +0000

I find that some of my friends with this “condition” have always been a little lazy. I suspected this a while back, and asked some people that knew them before I did. My suspicions were confirmed in all cases. They are still my friends, as I love people very much. I have a few aches and pains as well, and do indeed consider myself as a slacker. Still manage to go to work and attempt to give 110%. A few of my friends tell me I’m making them look bad because I use a cane and lost a small percentage of my heart function after my heart attack. But open heart surgery did wonders in my case. I’m an auto mechanic and I can tell you that its a cold, dirty, thankless occupation, but I didnt want to just waste away and made a promise to myself that if I lived through heart surgery, I was gonna work with all my might, as I feel now, as I did then, its far better to have to work by the sweat of your brow and suffer, than to be dead and not be able to do anything. Now that I think about it, those friends are making themselves look bad.